I Am A Zebra!

Hey, your kind a cute……….

A Little Radiculousness in slaying the Monsters Hiding in Our Health Care!

I Am A ZEBRA! yup…..

It really is a thing and Yes, my mental Health Insurance is paid.

Not all Zebras are alike. Despite their appearance, zebras aren’t just black and white.

We, like our Zebra counterpart are sturdy, spirited animals that are a study in contrasts: willful and playful, social and standoffish, resilient and vulnerable. Our life in a herd can be complex, yet we also find safety in numbers. We, both types, Human and Equid can be prey for predators, but are by no means shrinking violets when it comes to defending ourselves. Read between the lines, and you’ll discover that the world of the Zebra is colorful indeed!

Our pastures often include areas one would not normally expect to find Zebras trotting along in. We can be often found in Medical Communities. Where we roam in office buildings, Hospitals, Research facilities or Laboratories. We can often be seen trotting to medical research or medical studies.

There are many varieties of Zebras, all with a variety of Stripes: White with black or black with white? Even some brown intermingled can be found.However, (there had to be a catch, right?), some Zebras are born with genetic variations that make them all black with white stripes, or mostly dark with the striped pattern on just part of their coats. And as it turns out, Zebras have black skin underneath their hair. It depends on how you look at it!

So, why the stripes you ask? They serve as a kind of protection from predators! They are also used for recognition. Our Stripes, our unique differences are not just for graphic design.

When all, especially we human kind zebras are grouped together, per our stripes we are better able to find support. Especially today, thanks to the internet! These Support Groups are vital to our existence. When combined in a group our symptoms ( stripes ) of various kinds make it easier for pharmaceutical companies, Medical Equipment companies and our doctors to hear and see us… Even, to pick out one type of zebra (condition) to follow. Zebra stripes are unique to each individual, and researchers in the field have used Zebras’ individual symptom patterns for identification. While in a herd, we can show our unique needs and strength, gaining recognition that might even lead to treatments for our rare disease or syndrome.

Personally, I belong to a couple of special rare Zebra herds. One with a large stripe down its spine called Arachnoiditis. It runs from the forelock area or Mane (cervical) to the back through the tail. The cauda equina region! The CES which gives many of us significant problems. It is usually caused by a medical error, or TB, and rarely meningitis. Although doctors prefer to say the cause is idiopathic. That Sounds better. Adhesive Arachnoiditis is a miserably painful scarring problem within the spinal canal, so you can just imagine how difficult this is to live with. It is also progressive.

Another herd of these rare Zebras has side stripes that wrap around our heads and ears, the faces often entirely. Called the Trigeminal Neuralgia herd. I can often be found trotting around in there. Softly trotting, since movement aggravates TN. Trigeminal Neuralgia note: If the stripes are fairly equal in size and color on both sides of the head that would be an even rarer subset of this Zebra herd. The bilateral herd., (Mine, wouldn’t you just know it, I have the rarest of the rare disease. (Go figure.)

The Atypical TN herd is quite hard to diagnose and none of the TN herds are easily treated. It is a painful chronic progressive rare disease. Consisting usually of at least the 5th cranial nerve (out of 12) entering from the base of the skull. It’s original name in France was The Tic Douloureux today it is also known as the Suicide Disease. And for good reason!

The herd which is among the rarest yet most likely among the largest is the Microvascular Coronary Disease, also known as the Small Vessel Disease herd.

The reason for this condition to be so rare as I understand it is because our Cardiovascular doctors through their education process were mostly taught and studied with and for men. By men for men. I don’t think it was meant to be that way, but men took for granted the two genders were more alike than we really are. Many, more women die of cardiac issues than men. It kills more women than death from all cancers combined! Well this is the 21st Century and changes are needed.

Recently some very bright informed women began a study about this phenomenon. Called the WISE study. The study was done in Maryland and opened the eyes and minds of the Cardiology professionals to the profound error of leaving women out from the studies and those missing results from text books. The WISE study is going a long way to explain the unique differences in the male and female bodies. Who knew? Apparently not many men. But I digress.

As medical Zebras we have a narrow road to follow. Today we have turned a corner but the road continues to be narrow, so now our path is curvy and narrow.

Since most medical schools that train our doctors train them to assist only the largest most relevant issues and species,(the horse) which is also the most prevalent. For reasons which likely include more $$$ profit, and a larger group of patients to be helped. (I am not at all cynical)lol

Because of all this, when the doctors hear the sounds of a herd or even a single four-legged animal moving toward them that sounds like an animal with hooves, tails swishing. They think horse. Equines and Equids all have similar traits characteristics. But like men and women they are very different.

The training these doctors spent years learning kicks in at the sound out of habit and treatment for the patient is started. But, when these patients don’t get better, the MD or DO or Chiropractor or PA becomes frustrated. Even confused. They try again, with the same poor results. This now is when the relationship between doctor and patient begins to suffer. The patient begins to think this doctor is inept or worse doesn’t care. The doctor assumes the patient is either not taking the treatment, otherwise known as non-compliant, or it’s all in her head. Especially if the patient is a mare! Stallions get a lot more effort as a usual rule.

The doctor, by his patients newly acquired and necessary Patient Advocate (more on that to follow) refers him to the internet sites from the keywords containing the patients symptoms. or hands him/her a file of information on this patients records and testing, Guess what pops up?

Now the doctor can understand what has really been going on. Because he was treating a Zebra and not a horse. .

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Published by Oh for crying out loud & it's Echoes!

About me it asks? Yikes...... Well I am a passionate and spirited mature woman of faith. Faith in God, My Lord and Saviour must always come first. Also I am a mom, of four. I was a wife 3 times, 2 times widowed. That was rough ! Rougher in every way more than I ever thought it would be.! I had no understanding of what the loss of a spouse entails. I was caretaker to each of them until they passed from their medical catastrophies. So after the last one passed I decided enough, I was done, could not experience that kind of loss again. Besides I began to think it was safer for the males in my life if we never get married. God has a purpose for this single aloneness He has me in today. So I will wait as He slowly reveals His plan for me to come. That is just fine with me. I just know those plans are going to be interesting at the very least. I am also a braggadocious Grandmom, Stepmom, Aunt, Sister, Cousin, and Friend of many. A woman who has much to say about a great deal. An Opinionated INTJ personality. Don't know about INTJ's? Thats your problem, google it. There are'nt many of us which I heard is a good thing. Ha it's all about perception. We are frustrating to be around because we are right. About almost anything and unrelenting. Just ask us. So by popular demand, (a few friends and family suggested that I write down some my experiences, notions, opinions. Certainly not so I wouldn't drive them all crazy with my ever competing thought and comments) 'Oh For crying out loud' was born. Born once in 2015 and then, Born again. More Recently. Now it is 'Oh For Crying Out Loud & it's Echoes'. I know it's a long name but I have trouble with being short. A work in progress. As the Good Lord has seen to bless my life with many diverse and rare maladies along with a humongous family, really large in size and in its fulnessl of unique and rare nutty complex diagnosis'. It seems fitting to share the mountainous climb many of us shared through our trips and travails of medical errors and not. We need advocates in our health system, loads of them. From every genre and field. People are dieing in vast numbers . The cover ups are humongous, unbelievably tragic. And common. Blame the Insurance companies? They certainly are a great part of the problem, but then so are their lawyers! Necessary, in many many ways yes! But there are good eggs in every basket, which means usually the opposite is also true. Just like we need them, we need pain. Well we do! How otherwise would we know fires are hot or learn the dangers to stay away from? However the medical profession in all it's glory is the most eggregious! All their services and administrators should carry ever more of the burden of responsibility along with all their ever greedy lobbyists and our corrupt nonsensical governing bodies! They take the cake!! Pharmaceutical companies, medical equipment companies cavorting along in orgy style with The FDA, hahaha ,yes we need them but not the harm they also cause. Well enough about all the icky difficult news.....for now. Blessings and hugs to you and I pray your helped by these stories and thoughts . Which more are to follow soon. If even you gain just a little better understanding of the goings on behind the scenes in our medical care for you and your loved ones protection, I will rejoice and a good Truth will be shared.. Until later......SS .

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